Just checked my blog and saw that it’s been a month and half since last post. Would like to say that this is because I’ve been super busy and all is going well. But that’s not the case, things are painfully boring here and aches and pains are wearing me down! Back is still messed up - walks are out of the question as is bike riding. Joints are sore, but possibly getting better now.

I had a visit with my liver specialist yesterday. All is good on the AIH front. My LFT (liver function tests) are still excellent, very low and normal, and unchanged from 2 months ago. And over that time period I’ve come off the evil steroids completely and am currently celebrating my first week without them since March. 4 months to regulate the inflammation caused by that stupid biopsy. The pain from the fistula and repair is still there. Feel it after being upright or standing/walking for an hour or so. Last week I had a bad pain episode after my blood draw and doing a few small errands. Pain was right there for a solid day, with sporadic pain all the way down the to groin area (via the hepatic artery that was messed with in the repair). Scary. Doc says can’t do anything about it except pain pills and to not push much.

Weight is holding steady, but still way too high. My back just can’t take the strain and my liver either I guess. Losing weight at home with extreme boredom, others around eating ‘normal’, and inactivity is nearly impossible. I have been pondering, researching, and stressing over the idea of getting some kind of weight loss surgery (WLS) to get things moving in the right direction. I’ll write more about that in another post I guess. But I spoke with my doc about it (he’s mentioned it a couple times). He says that the current waiting list is about 5 YEARS long. Very discouraging! I had thought and read that 1 to 1.5 years is what to expect, going through all the counselling, nutrition courses, and pre-surgery diet/weight-loss. Guess that is what they aim for, but the canadian system is backlogged. Put the request in anyway to get in line. Doc said that I could possibly resubmit a more ‘rush’ request if the wait is that long for me. In that I’d have to stipulate all the problems I have with gallstones (I don’t have any ATM because I don’t eat fat) and mention my liver condition and back condition (not sure I’ll live 5 years without some major weight loss!)

So I guess I can stop stressing about the WLS and how difficult and possibly miserable it would be to live with that constant restriction. I’m glad the liver is doing better, guess I should jsut focus on that. Would be easier IF I HAD SOMETHING USEFUL and INTERACTIVE TO DO WITH MY TIME!!! I’m completely out of ‘idle’ stuff to do. Watched every TV series that I’ve ever liked and over 700 movies in the past 3 years … on top of normal TV. Sick of it. Internet is equally boring after about 1 hour a day. arrrrrrrrgh! anyway, bed time.

This entry was posted on Friday, August 1st, 2008 at 10:01 pm and is filed under Health/AIH, Personal. You can follow any responses to this entry through the RSS 2.0 feed. You can leave a response, or trackback from your own site.