Things have finally calmed down in my system so I can blog. Feels that way anyway, future tests will show over the next month.
About 10 days ago I had my third liver biopsy since this whole mess started about 2.5 years ago. Another transjugular biopsy done at the Royal Victoria hospital in Montreal. It’s supposed to be a more or else routine and safe day-long thing … but I guess it was not so for me. Read More »
Been in the hospital (St-Jean-sur-Richelieu) for a week now after 2 months of pain and worsening condition at home. I could no longer get out of my bed and to the bathroom on my own … so had no choice but to call the ambulance and have them bring me in to hospital. i’m looking at at least 2 more weeks here while i wait for a spot in a rehabilitation centre. I’ll have to go to one of those for at least 3-4 weeks from sound of it from the ortho doc. not only do i have one lumbar vertebrae fractured and compacted 50% .. but i also have about 4 others that are weakened and fracturing. gotta do everything possible to prevent hurting myself more or i could become completely immobile. Fell 3 times at home in the last week i was there. really bad situation.
things are gonna get really rough next couple months. as if I needed more hardship eh? 
emotions are pretty bad ATM. then i got the back pain. worries for what future will bring. and trying to figure out how i’m gonna pay for rehab and modifications to home so I can return there. going to need rails installed, purchase a height and head adjustable bed, etc. all on welfare! grrr. life sucks
Blah. Has not been the best of months here! Started just before Christmas with a bad cold that really put a damper on the festive season. Then 2 days after Christmas I developed this horrible pain in my lower right side. Fearing the worst, I thought that I had overdone it with the fatty foods and had set off a gallstone attack … which in turn started chaos in my liver and/or pancreas. These are my troublesome organs, all taking a severe beating as a result of my ill-health and treatment. Pain was truly horrible and debilitating. I could barely get out of bed in the mornings … and only then with a sharp pain so excruciating I usually had to let out a scream and ‘endure’ the pain for a few minutes. Being somewhat stubborn and fearing reentry into the hospital, Read More »
Not sure what is going on with my health lately, but something is definitely wrong. I haven’t been able to figure it out, so I thought I better write it down before I forget in case it’s important later. On Sunday, May 7th, I had a sudden increase in abdominal swelling … probably 3-4 inches left, right, and out - all along my lower gut, and some up the middle as well. It really freaked me out needless to say. I had just started a new course of medication 4 days prior, and had over-exerted myself that day reorganising the shacks outside. At the time, I presumed that the swelling was a result of one of those 2 things. I noticed that my face was also looking swollen. Getting worried. I tried in vain for a week to get a hold of my liver specialist - an impossible task given that there is no answering service at his office or clinic. Read More »
Well after spending almost 16 days in the hospital (Royal Victoria in Montreal) I finally have the name of the beast that has been causing me so much trouble of late. I have autoimmune hepatitis, and it’s not a good thing. But I am so glad to finally have a diagnosis … even if the outlook isn’t that promising. I had a horrible time in the hospital … the first 2 teams whose care I was placed did a completely incompetent and useless job of diagnosing the problem. It took a consult from a specialist, a new team of doctors, and a lot of yelling and crying by myself and my sister in order to get them to take some prompt action. Basically, they were treating me as if I was the least important person in the hospital and not booking me for the necessary tests with urgent status. They really put my life at risk and once i’m better, they will pay for that >:|
Anyway, here is what happened … Read More »
